About this issue
The inaugural issue of the Journal of Health Data Protection explores the evolving landscape of health data governance — from regulatory frameworks and compliance challenges to trust, security, and real-world applications across Europe and beyond.
This issue brings together contributions from leading experts in data protection, healthcare, and policy.
The first issue is currently under editorial review and will be published in May 2026.
Summary
Editorial Board
Co-chairmans of the editorial board and the reading committee
Pierre-Yves Lastic, Secretary General EFDPO
Dipak Kalra, I-HD
Co-editors-in-chief
Daniela Will, Data Protection Officer and Head of the Data Protection Unit, Klinik gGmbH
Nathan Lea, I-Hd
Marie Penot, Founder and Consultant – EuroDataProtection UG
Organisation
Organisation chart
Interview of Francesca Colombo, Head – OECD Health Division
Health Data Regulation :
EDPS v SRB and the Twenty-Year Arc of EU Identifiability
Patrice Navarro, Partner Clifford Chance Europe LLP
From compliance to confidence: rethinking health data governance
Special Issue — 3rd EHDPC, Paris 2025 :
Blockchain and Health Data Governance in Europe
Céline Gauthier-Maxence, Postdoctoral Researcher, Paris School of Economics (PSE) / CNRS
Carine Milcent, Research Director, CNRS; Professor, Paris School of Economics
Data governance and security frameworks in the Gulf Cooperation Council states
Ahmed Alhatlan, Board Member, Digital Transformation
Beyond names and codes: pseudonymization as a data governance and engineering tool
Giuseppe D’Acquisto, Garante per la protezione dei dati personali – Italy
Genetic Data: use and security in criminal investigation
Yvan Malgorn, Retired Colonel, French Gendarmerie; Expert in Criminal Investigation and Data Governance
Innovation and Genetic Data Sharing: Trust, Consent and Compliance in UK/ European Research
Verónica Miño, Partner / Prokuristin / Senior data protection counsel at first
Tania Palmariellodiviney, Founder and Data Protection Consultant, Data Privacy Simplified
Health Data Ownership Reconsidered: From Property Claims to Stewardship and Collective Governance
Petra Wilson, European Institute for Innovation through Health Data – Information Governance Expert
Horizon scanning: Changes to secondary uses of Health Data in the EU and UK
Dr. Lawrence William Carter, Data protection officer and life sciences sector lead, the dpo centre
Secondary Use of Genomic Data in Switzerland: Upholding Trust Beyond Legal Obligations
Michaela Egli, PhD
Susanne Driessen, MD
The Limits of Transparency: Incidental Findings, Genetic Data, and the Ethical Tension of Patient Rights
Anastassia Negrouk, COO & DPO MyData-TRUST
Standardizing Legal Agreements for Secondary Health Data ReUse in Swiss Multi-Center Research
Judit Kiss Blind, lic.iur.
Michaela Egli, PhD
Julia Maurer, PhD
Conferences
Conferences schedule