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Article from issue n°2

Standardizing Legal Agreements for Secondary Health Data REUse in Swiss Multi-Center Research

By

Judit Kiss Blind, lic.iur.;
Michaela Egli, PhD;
Julia Maurer, PhD
Article from issue n°2

Secondary Use of Genomic Data inSwitzerland: Upholding Trust BeyondLegal Obligations

By

Michaela Egli, PhD, Swiss Personalized Health Network (SPHN),
Susanne Driessen, MD, Chair of the ELSIag of the Swiss Personalized Health Network;
Article from issue n°2

HORIZON SCANNING: HEALTH DATA IN THE EU AND UKCHANGES TO SECONDARY USES

By

Dr. Lawrence William Carter, PhD, CIPP/E, CIPM, CIPT, AIGP, FIP

Messages from the

CO-EDITOR IN CHIEF

By

Daniela WILL

DATA PROTECTION OFFICER AND HEAD OF THE DATA PROTECTION UNIT, KLINIK GGMBH

Messages from the

CO-EDITOR IN CHIEF

By

Marie Penot

FOUNDER AND CONSULTANT – EURO- DATAPROTECTION UG

Messages from the

CO-EDITOR IN CHIEF

By

Nathan LEA

DATA DRIVEN HEALTH INNOVATION, REGULATION AND ETHICS EXPERT (I-HD)

Messages from the

CO-CHAIRMAN

By

Dipak KALRA

PRESIDENT AT THE EUROPEAN INSTITUTE FOR
INNOVATION THROUGH HEALTH DATA (I-HD)

Messages from the

CO-CHAIRMAN

By

Pierre-Yves Lastic

SECRETARY GENERAL EUROPEAN FEDERATION OF DATA PROTECTION OFFICERS (EFDPO)

Interview from Issue n° 1

Interview for the JHDP with Francesca Colombo

By

Dipak Kalra, President at The European Institute for Innovation through Health Data (I-HD)


Article from issue n°1

Data Governance and Security Frameworks in the Gulf Cooperation Council States

By

Dr. Sami Almudarra1 MD, Ahmed Alhatlan1, Sadeem Alshiban1, Mazin Alrahbi1
Article from issue n°1

The Limits of Transparency: Incidental Findings, Genetic Data, and the Ethical Tension of Patient Rights

By

Anastassia Negrouk, COO & DPO MyData-TRUST
Article from issue n°1

Beyond Names and Codes: Pseudonymization as a Data Governance and Engineering Tool

By

Giuseppe D’Acquisto, Officer, italian Data Protection authority

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