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Messages from the

CO-EDITOR IN CHIEF

By

Daniela WILL

DATA PROTECTION OFFICER AND HEAD OF THE DATA PROTECTION UNIT, KLINIK GGMBH

Messages from the

CO-EDITOR IN CHIEF

By

Marie Penot

FOUNDER AND CONSULTANT – EURO- DATAPROTECTION UG

Messages from the

CO-EDITOR IN CHIEF

By

Nathan LEA

DATA DRIVEN HEALTH INNOVATION, REGULATION AND ETHICS EXPERT (I-HD)

Messages from the

CO-CHAIRMAN

By

Dipak KALRA

PRESIDENT AT THE EUROPEAN INSTITUTE FOR
INNOVATION THROUGH HEALTH DATA (I-HD)

Messages from the

CO-CHAIRMAN

By

Pierre-Yves Lastic

SECRETARY GENERAL EUROPEAN FEDERATION OF DATA PROTECTION OFFICERS (EFDPO)

Interview from Issue n° 1

Interview for the JHDP with Francesca Colombo

By

Dipak Kalra, President at The European Institute for Innovation through Health Data (I-HD)


Article from issue n°1

Data Governance and Security Frameworks in the Gulf Cooperation Council States

By

Dr. Sami Almudarra1 MD, Ahmed Alhatlan1, Sadeem Alshiban1, Mazin Alrahbi1
Article from issue n°1

The Limits of Transparency: Incidental Findings, Genetic Data, and the Ethical Tension of Patient Rights

By

Anastassia Negrouk, COO & DPO MyData-TRUST
Article from issue n°1

Beyond Names and Codes: Pseudonymization as a Data Governance and Engineering Tool

By

Giuseppe D’Acquisto, Officer, italian Data Protection authority
Article from issue n°1

Health Data Ownership Reconsidered: From Property Claims to Stewardship and Collective Governance

By

Petra Wilson, European Institute for Innovation through Health Data – Information Governance Expert
Article from issue n°1

Innovation and Genetic Data Sharing: Trust, Consent and Compliance in UK/ European Research

By

  • Veronica Mino, Partner
  • Tania Palmariellodiviney, Founder
Article from issue n°1

The Forever Code: Genetic Data, Privacy, and the Future of Research

By

Xiao Liu, PhD – Stephane Lejeune

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